A thousand tiny cuts

The fantastic Laina quotes from an USA Today article on microaggressions:

 “the constant and continuing reality of slights, insults, invalidations and indignities”.

Today I spent way more time than I wanted in my boss’s office explaining that I’d been busting my ass trying to get work done for him, but no matter how hard I tried, it seemed like I never produced what he wanted. I’d taken to a project to what appeared to be a dead end, documented said dead end (you can’t run five vms that need 8 gigs of memory each when you only have 16 gigs total to use, including the memory needed to run the host), and tried to spend the subsequent time learning something useful.The whole exercise seemed to me like trying to build a race car out of rubber bands, and destined to fail.

Apparently, and unbeknownst to autistic, literal me, they had expected me to pursue other angles that involved pulling in members of other departments, filing requests for stuff that I’d already filed similar requests about, somehow recruiting higher-ups into delivering stuff I couldn’t deliver myself. Despite the fact that every time I ask for something (specifically, in WRITING) they give me something different. It’s kind of a fraught sexist environment, I’m autistic and female. I’m always going to do it wrong.


To me, my job seems like an endless game of Calvinball. And this is of course my fault.

I don’t remember how I came across the term “microaggression”, but apparently I did, and I’m guessing that it was a post on Facebook or Twitter made by someone who is on the Asperger’s/autism spectrum. I can’t recall if it was posted specifically in reference to Asperger’s/autism, but I do know that as I researched […]

via Asperger’s / autism and microaggression  — the silent wave


So much this.

finallyknowingme has captured an experience I’ve been having for ages. I used to think inconsistent levels of competence was some sort of personal failing, but it’s just part of our way of being.  We need to allow for it, not beat ourselves up over it.

The undamped pendulum mentioned in Uncomfortable continues to swing. My life continues to feel like it has some way to go before it settles into whatever my new “normal” becomes. I don’t imagine, for one moment, that I shall ever achieve the stability that many people seem to in their lives – I’m just not […]

via Oscillating — Finally Knowing Me: An Autistic Life

“What are eyes for, anyway?”

residentsThis essay, “On having no head” (here’s the whole thing), blew my mind when I first read it as a teenager, as part of a collection called The Mind’s I. Essentially, it’s an elaborate discussion of how you can never look directly at your own eyeball.   D. E. Harding writes:

… a picture of me-with-a-head is no likeness at all, it is the portrait of a complete stranger, a case of mistaken identity.

In response, Douglas Hofstadter, one of the compilers of the collection, talks about how we are able to figure out that we are, ourselves, human (and mortal, which is supposed to be the scary part), because we must, to some degree, resemble all the humans we can actually see:

…people are by far the best at the piling up of new category upon new category. This capacity is at the core of human nature and is a profound source of joy.

After 46 years of not recognizing myself, it’s going to take me some time to find this joy.  For now, clarity will have to do — a category:  Autistic.  An explanation. What’s happened is not just a series of arbitrary and self-inflicted shitstorms — those shitstorms now have context.

Late diagnosis, grief, adjustment, shock, relief, layers and layers of unwrapping and reframing. Mirrors facing one another at an angle, creating twisting images of the same shrinking figure, further and further away, me still bending this way and that, trying to get a better look, always obscuring the complete view.  Mirrors are no good. I still can’t see myself.

But I can see you.

And so, to all of the thoughtful, articulate, creative people who’ve shared and continue to share their stories: I’m so glad to know you’re out there. Thank you.

I’m not sure what I have to add to this conversation.  I have the reflexive habit of remaining on the outside of the circle quietly watching, never knowing the right time to join in.

Beginning in the middle

Where do I start?

Sometimes my son says, “I can’t words,” and I know exactly what he means. Words, I think, are all I have; my mind doesn’t do pictures. I can draw if I get the wordsy bit to shut up, but it’s as if the words are crushing the images, distorting them into scribbles, something that a toddler would do. Handwriting was never a strong suit for me.

When I was a kid I would go mute under stress, lock myself in a room, sit on the floor, semi-catatonic, while the grownups started to panic that I was beyond salvaging. Other times I was chatty as anything, with that precocious vocabulary that certain odd children have. I’d read my mother’s medical journals, the Latinate and Greek anatomical terms gradually focusing themselves over the repetitions. Hepatic. Renal. Substantia nigra.

I’ve been reading of a common experience of overawareness combined with a lack of self awareness. Anxiety that I’m always doing or saying the wrong thing, but never sure when it’s happening. Not enough clues to know, other than occasionally the sense, in a room, of heaviness, of a lack of response that indicates deep wrongness, something I should know, but don’t.

I am typing with my eyes closed. If I open them and look at what I’m writing, I will be compelled to back up, cross out, start over, erase. Too much self awareness leads to more mutism. Too much self awareness leads to running on in some idiotic prattle for too long, boring the audience, such as it is, driving away anyone kind enough, or unassertive enough, not to beg off at the nearest opportunity. Bad. Wrong. Stupid. Always say the wrong thing first, realize it, and backpedal. Know the answer but take too long to say it, except when I blurt out something so quickly that it’s either deeply correct or excruciatingly incorrect. Either way: weird. Off kilter. Laugh too soon, or not at all.

I took a job that required human contact, lots of it, because I knew it was a skill I should work on, and this would force me into making the effort. Well, I made the effort, only to be told that people would rather I didn’t. Incompetent.

I asked my boss what I was good at. He said if I were stranded in the desert with a broken car I would probably find a way to get air into the tires, even if that seemed impossible, but the problem with the car wasn’t the tires. I’m solving the wrong problems. I once worked for a well-known literary figure who eventually, inevitably, fired me, saying I was obviously smart but had “no business sense whatsoever.” That has never changed. I’m looking for work again, hoping to go before I’m pushed out.

As a child, I flapped my hands when I was excited. I hid in closets at school when I was upset. I was mute. I was sexually harassed on the bus for months, the older boy insisting, in a mocking voice, that he was in love with me, he was serious, and if I cried I’d only make things worse. I never had a problem detecting sarcasm.

I open my eyes to fix the typos and the repetitions. Those words belong to the screen, not to my eyes. Don’t say anything; it will be wrong. I want to go limp, but the deadlines are looming, the gates are slamming shut: I want them to. I want to rest.